Northern Ireland Rare Disease Partnership (NIRDP)

Northern Ireland Rare Disease Partnership (NIRDP) is an umbrella group working to raise awareness, connect, educate and innovate on behalf of the entire rare disease community!Contact us for Information, support, guidance and signposting at nirdp.org.ukWe support any individuals, family members, carers, friends or even health care professionals living or working with a rare condition in NI. We accept referrals or self referrals through social media, website, email or phone.We Can Provide:Information to support diagnosis Emotional support/a listening ear Connections to support organisations in the rare disease community Benefit advice Access to mental health services Practical support Referral by GP/Health Visitor/Hospital/Self – Please contact us directly via email at info@nirdp.org.uk or see our website nirdp.org.ukPlease see leaflet for more information.

Service details

• Contact person: Mariam Prasad
• Available age groups: All Ages
• FamilySupportNI categories: Health and Wellbeing
• Areas covered: All of N Ireland
• Referral methods: GP | Health Visitor | Hospital | Self

Source: FamilySupportNI listing