Huntingtons Disease Association Northern Ireland (HDANI)

HDANI provides the following services to those affected in any way by Huntington’s Disease across Northern Ireland; Family Support Workers: To provide emotional and practical support, advice, and information in any area that could be impacted by HD or by being a carer, from finances to employment, housing, accessing medical services, genetic testing, family planning, explaining HD to others.Huntington’s Disease information: via our website, newsletter, e–zine and social media pages. Annual Family Conference: learning and social events Monthly facilitated support groups: in Belfast, Omagh, Newry & Maghera which are open to patients, those at risk of inheritance, family members, carers, partners and friends An event-based facilitated service for children and young adults Specialist training and events for health and social care professionals Campaigning and lobbying for improved services

Service details

• Contact person: Sorcha McPhillips, Chief Executive
• Available age groups: All Ages
• FamilySupportNI categories: Health and Wellbeing
• Areas covered: All of N Ireland
• Referral methods: GP | Self | Other

Source: FamilySupportNI listing