Undiagnosed - Supports Families affected by a Syndrome Without a Name

Approximately 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare that it is often impossible to diagnose. Without a diagnosis it can be difficult to access basic information and support. We have information leaflets which are available to download. We offer 24/7 information and support through our online forums for registered members.Please see website for more details : www.undiagnosed.org.uk/

Service details

• Available age groups: All Ages
• FamilySupportNI categories: Disability – Learning Disability, Autism, ADHD | Disability – Physical & Sensory
• Areas covered: All of N Ireland
• Referral methods: Self

Source: FamilySupportNI listing